Giuliana Marogy, who had the disease as a very young child, describes the group as a place where she can be around others with a similar experience.
“We support each other, we have a laugh as well. You don’t have to pretend, you can be yourself, whereas in society you have to put up a front,” she said.
“It’s a shared identity type of thing … we’re not afraid to ask for help here, whereas in society you’re not meant to ask for help. That’s the way I was brought up and I think the majority of us would be the same as well.”
Also known as poliomyelitis, polio is an infectious disease caused by a virus that attacks the nervous system, with approximately one in 200 cases causing irreversible paralysis.
Although no-one has caught the disease ‘wild’ or locally acquired in Australia since 1972, survivors still deal with the neurological effects years later.
Many people who have had paralytic polio develop late effects of polio, and up to 40 per cent may develop post-polio syndrome, which can cause symptoms such as new muscle weakness, decreased muscle endurance, breathing and swallowing difficulties and fatigue.
Rosemaree Ryan is a carer for her husband, who suffers from post-polio syndrome decades after he caught the disease and says the group is also a valuable source of information.
“Every three months, you go and have lunch, they’ll bring in guest speakers and if not, you can chat to people. It didn’t happen for two years (due to the COVID-19 pandemic) so it’s nice to get back in,” she said.
The group, which is facilitated by the GV Health – Rural Allied Health Team, arranges guest speakers on relevant topics, including My Aged Care, Polio Australia and Post-Polio Victoria.
“You learn and you socialise so yeah, it’s a good group,” Rosemaree said.
October is Polio Awareness Month, with World Polio Day marked on October 24; this year’s theme is ‘We’re still here’, to raise awareness of the late effects of polio.
The Mooroopna Water Tower and Monash Park Tree in Shepparton will be lit up orange to commemorate the occasion.
